Showing posts with label self. Show all posts
Showing posts with label self. Show all posts

20180715

Spondylolisthesis

I feel like I am always reading articles, blog posts, forums, about spondylolisthesis. I am torn on what to do. I mean obviously there is no prefect time to have surgery. Being "out of commission" for around 6 weeks, unable to drive at all for about the same, scares me.
So does worsening pain. The thought that I could need an emergency surgery, or be left with permanent nerve damage, terrifies me.
I'm 40, this isn't something I should be facing right now. I know my pain isn't yet that bad, MOST OF THE TIME. But I have days where it is, and I can't figure out what makes it better or worse. Well, if I'm lazy and do nothing I am likely to feel better than if I spent my day on my feet. But are there simple things I do on a good day? Like "today i stretched and iced my back and I was in less pain" or "today i vacuumed and swept and was in more pain". I really should keep track of my pain level and my activity level.
Of course if I go see the Dr and he'll order a flexion/extension  x-ray to see if my spondy is stable, and it turns out it isn't? I feel like that would be a HUGE reason to seriously consider the surgery.

All I know is that if I can maintain where I am I might be ok, but if it keeps getting worse? I can't even imagine. 

20180704

Surgery

I am seriously considering surgery to  "fix" my back. I recently had a follow up MRI to check my slippage. Since April 2017 my L5  has moved and I know I'm having more pain. And it looks like L4 might be moving as well.

Today I was cooking dinner, I had been standing up in the kitchen for 30 minutes and suddenly it felt like the outside of my right leg was covered in goose bumps (there were none!) That was 3 hours ago and my leg still feels wrong. I keep having strange sensations up and down it. I took a hot bath hoping for relief, but even while I was in there I could feel the nerve pain, like pouring  burning coffee down my leg.

Ever since I read my MRI results I've been feeling so afraid. I was sort of ok before that. But I feel depressed and miserable.

I know Will is 100% supportive of surgery because he knows I don't make these choices lightly, and he had known people who've had similar life altering surgeries with excellent results.

But I'm afraid, still. It is surgery. It isn't a guaranteed fix. My Dr said I have an  80% chance of relief because my pain is mostly nerve pain. And there is a long recovery period. That's scary.

But feeling like this for the rest of my life is scary, too. I said if there was changes in the MRI I would really look into surgery, because what's the likelihood it will continue to get worse? How likely am I to eventually get to the point of not being able to walk more than 5 minutes?

Making this choice is difficult. I wish there was a sure fire way to make the right one. But I'll spend the next month researching.

20180607

Pars Defect

It's been nearly a year since I posted. I'm still dealing with daily back pain. I'm tired, and every part of me is distracting because of it.

The only thing that isn't suffering, is my marriage. We've renewed our love for one another and things have never been better. But I digress.

I have a pars defect, a place where I either had a birth defect or a break in my lower vertebrae, that was ok, until I started running. The jarring motion caused me pain in my back and numbness in the nerves running down my right leg. So I've seen multiple doctors about it and had many scans. I'm going in for another MRI soon, so see if there is any change from the one i had on April of 2017.

I have three choices at this point-
1. Live with the pain, and be very careful.
2. Pain management (medicines that can help block the nerve pain).
3. Surgery- a fusion of the L5-S1 vertebra.

I've been living with the pain for 18 months now. It's depressing,  I want to be active but I have to be really careful, and I CAN NOT, UNDER ANY CIRCUMSTANCES- RUN. Because every time I do it flares and takes weeks to get back to me being able to move without pain and without having that shooting burning, numb, weird nerve pain.

I am reluctant to try pain management. I researched it and anti depressants are commonly used to treat nerve pain, or anti convulsants.  Or opioids to dull the pain. I have Tylenol 3, from my bunion surgery, it does little to relieve any pain. Neither does tramadol (another narcotic that I have from the very beginning of this, it was prescribed by my primary care doctor the first time I went in for back pain.)

Surgery.....
Terrifying. Mainly because the doctor said that if I choose surgery, it will cause the vertebrae above the fusion to start taking on the impact and they will wear out faster, increasing my likelihood of needing further surgeries by 10-20% in the future. Plus, surgery hurts, an the recovery would not be fun. But it was a high rate of success since my main complaint is the nerve pain.

I'm waiting to make any concrete choices until my  MRI. If there of any measurable change, then surgery is an easy answer. I don't want this to get worse! But if it's exactly the same, maybe I can live with it, at least for another year. At which point Bee will be in 1st grade and I won't need to meet her at the bus stop every day.

I wish there was an easy answer. I had hoped that  wearing a brace would help (no) the epidural steroid shots would help (minimally, but they also have side effects that I didn't like), it would go away on its own (I've had issues go away before!) Alas, none of those are really the answer.

So, I keep waiting, like I've been doing for 18 months.

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